Information Collection List

IC Title Status Responses Hours Dollars Document Type Form No. Form Name
ALS Biorepository Collection Form- Saliva Unchanged 350 58 0 Form none ALS Biorepository Saliva Collection
ALS Biorepository Specimen Processing Unchanged 325 163 0 Form none Biorepository Specimen Processing
ALS Case Registration Unchanged 1500 250 0 Form none Case registration
ALS DIsease Progression Survey Unchanged 2250 188 0 Form none Disease Progression Survey
ALS Registry Research Application Modified 36 18 0 Form and Instruction n/a National Amyotrophic Lateral Sclerosis (ALS) Registry Research Application Form (rev. May 2021)
ALS Validation Questions Unchanged 1670 56 0 Form none Case validation questions
Annual Update for Projects Receiving Specimens or Data Unchanged 24 6 0 Form none Annual update for projects receiving specimens and/data
National Office Outreach Reporting Unchanged 24 8 0 Form none National Office Outreach Reporting
Outreach Reporting Form for Chapters and Districts Unchanged 1620 135 0 Form none Chapter/District Outreach Reporting
Voluntary Survey Modules Unchanged 750 1063 0 Form none Voluntary Survey Modules
Form none Sports participation module
Total burden requested under this ICR: 8549 1945 0  
To view an IC, click on IC Title