PRA IC List
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Agenda
Reg Review
ICR
Information Collection List
IC Title
Status
Responses
Hours
Dollars
Document Type
Form No.
Form Name
ALS Biorepository Collection Form- Saliva
Modified
350
58
0
Form
none
ALS Biorepository Saliva Collection
ALS Biorepository Specimen Processing
Modified
325
163
0
Form
none
Biorepository Specimen Processing
ALS Case Registration
Modified
1500
250
0
Form
none
Case registration
ALS DIsease Progression Survey
Modified
2250
188
0
Form
none
Disease Progression Survey
ALS Registry Research Application
Modified
36
18
0
Form and Instruction
n/a
National Amyotrophic Lateral Sclerosis (ALS) Registry Research Application Form (rev. May 2021)
ALS Validation Questions
Modified
1670
56
0
Form
none
Case validation questions
Annual Update for Projects Receiving Specimens or Data
Modified
24
6
0
Form
none
Annual update for projects receiving specimens and/data
Essential Questionnaire
Modified
750
75
0
Form and Instruction
n/a
Essential Questionnaire
Follow-up Questions - ALS-associated and Clinical Factors
New
750
88
0
Form and Instruction
n/a
ALS-associated and Clinical Factors
Follow-up Questions - Demography
New
750
25
0
Form and Instruction
n/a
Demography
Follow-up Questions - Environmental Factors
New
750
288
0
Form and Instruction
n/a
Environmental Factors
Follow-up Questions - Lifestyle Information
New
750
400
0
Form and Instruction
n/a
Lifestyle Information
National Office Outreach Reporting
Modified
24
8
0
Form
none
National Office Outreach Reporting
Outreach Reporting Form for Chapters and Districts
Modified
1620
135
0
Form
none
Chapter/District Outreach Reporting
Total burden requested under this ICR:
11549
1758
0
To view an IC, click on IC Title