Information Collection List

IC Title Status Responses Hours Dollars Document Type Form No. Form Name
ALS Biorepository Collection Form- Saliva Modified 350 58 0 Form none
ALS Biorepository Specimen Processing Modified 325 162 0 Form none
ALS Case Registration Modified 1500 250 0 Form none
ALS DIsease Progression Survey Modified 2250 188 0 Form none
ALS Registry Research Application Modified 36 18 0 Form and Instruction n/a
ALS Validation Questions Modified 1670 56 0 Form none
Annual Update for Projects Receiving Specimens or Data Modified 24 6 0 Form none
Essential Questionnaire Modified 750 75 0 Form and Instruction n/a
Follow-up Questions - ALS-associated and Clinical Factors Modified 750 88 0 Form and Instruction n/a
Follow-up Questions - Demography Modified 750 25 0 Form and Instruction n/a
Follow-up Questions - Environmental Factors Modified 750 288 0 Form and Instruction n/a
Follow-up Questions - Lifestyle Information Modified 750 400 0 Form and Instruction n/a
Incentives Pilot Project Sign Up form – Only for Texas Registrants Removed 0 0 0 Form and Instruction n/a
National Office Outreach Reporting Modified 24 8 0 Form none
Outreach Reporting Form for Chapters and Districts Modified 1620 135 0 Form none
Total burden requested under this ICR: 11549 1757 0  
To view an IC, click on IC Title