ICR Documents

Document Date Uploaded
2023 2 13 SSA MDSTARnet_Survey.docx 02/24/2023

Document Date Uploaded
2023 2 13 SSB MDSTARnet_Survey.docx 02/24/2023

Title Document Document Type Date Uploaded
Authorizing Legislation: PHSA Attachment A_Public Health Service Act.docx Supplementary Document 02/24/2023
Authorizing Legislation: MD CARE Act of 2001 Attachment B_MD CARE Act of 2001.pdf Supplementary Document 02/24/2023
60-day Federal Register Notice Attachment G_60 Day Federal Register Notice.pdf Supplementary Document 02/24/2023
MD STARnet Case Definitions Attachment H_MD_STARnet_CaseDefinitions_8.6.2021.docx Supplementary Document 02/24/2023
IRB Approval: University of Florida Attachment I_UFlorida IRB Approval MDSTARnet Survey.pdf Supplementary Document 02/24/2023
IRB Approval: University of Iowa Attachment J_UIowa IRB Approval MDSTARnet Survey.rtf Supplementary Document 02/24/2023
IRB Approval Not Required (Exempt): RTI Attachment K_RTI IRB Exemption MDSTARnet Survey.pdf Supplementary Document 02/24/2023
IRB Approval Not Required (Exempt): New York State Dept of Health Attachment L_NYSDOH IRB Exemption MDSTARnet Survey.pdf Supplementary Document 02/24/2023
IRB Approval: South Carolina Dept of Health & Environmental Control Attachment M_SCDHEC IRB Approval MDSTARnet Survey.pdf Supplementary Document 02/24/2023
IRB Approval Not Required (Exempt): University of Utah Attachment N_UUtah IRB Approval MDSTARnet Survey.docx Supplementary Document 02/24/2023
IRB Approval: Virginia Commonwealth University Attachment O_VCU IRB Approval MDSTARnet Survey.pdf Supplementary Document 02/24/2023
IRB Approval Not Required: Centers for Disease Control and Prevention Attachment P_MD STARnet Survey Research Determination.pdf Supplementary Document 02/24/2023
Flow Chart for the MD STARnet Muscular Dystrophy Survey Attachment Q_Study Flowchart.docx Supplementary Document 02/24/2023
Recruitment and Follow-up Communications Attachment Ra-i_RecruitmentandFollow-upCommunication.docx Supplementary Document 02/24/2023

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