PRA ICR Documents
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Agenda
Reg Review
ICR
ICR Documents
Supporting Statement A
Document
Date Uploaded
2023 2 13 SSA MDSTARnet_Survey.docx
02/24/2023
Supporting Statement B
Document
Date Uploaded
2023 2 13 SSB MDSTARnet_Survey.docx
02/24/2023
Supplementary Documents
Title
Document
Document Type
Date Uploaded
Authorizing Legislation: PHSA
Attachment A_Public Health Service Act.docx
Supplementary Document
02/24/2023
Authorizing Legislation: MD CARE Act of 2001
Attachment B_MD CARE Act of 2001.pdf
Supplementary Document
02/24/2023
60-day Federal Register Notice
Attachment G_60 Day Federal Register Notice.pdf
Supplementary Document
02/24/2023
MD STARnet Case Definitions
Attachment H_MD_STARnet_CaseDefinitions_8.6.2021.docx
Supplementary Document
02/24/2023
IRB Approval: University of Florida
Attachment I_UFlorida IRB Approval MDSTARnet Survey.pdf
Supplementary Document
02/24/2023
IRB Approval: University of Iowa
Attachment J_UIowa IRB Approval MDSTARnet Survey.rtf
Supplementary Document
02/24/2023
IRB Approval Not Required (Exempt): RTI
Attachment K_RTI IRB Exemption MDSTARnet Survey.pdf
Supplementary Document
02/24/2023
IRB Approval Not Required (Exempt): New York State Dept of Health
Attachment L_NYSDOH IRB Exemption MDSTARnet Survey.pdf
Supplementary Document
02/24/2023
IRB Approval: South Carolina Dept of Health & Environmental Control
Attachment M_SCDHEC IRB Approval MDSTARnet Survey.pdf
Supplementary Document
02/24/2023
IRB Approval Not Required (Exempt): University of Utah
Attachment N_UUtah IRB Approval MDSTARnet Survey.docx
Supplementary Document
02/24/2023
IRB Approval: Virginia Commonwealth University
Attachment O_VCU IRB Approval MDSTARnet Survey.pdf
Supplementary Document
02/24/2023
IRB Approval Not Required: Centers for Disease Control and Prevention
Attachment P_MD STARnet Survey Research Determination.pdf
Supplementary Document
02/24/2023
Flow Chart for the MD STARnet Muscular Dystrophy Survey
Attachment Q_Study Flowchart.docx
Supplementary Document
02/24/2023
Recruitment and Follow-up Communications
Attachment Ra-i_RecruitmentandFollow-upCommunication.docx
Supplementary Document
02/24/2023
Public Comments
Author Name
Comment Document
Author Affiliation
Sponsoring Org.
Type
Category
Date of Comment
Date Comment Received
Blank fields in records indicate information that was not collected or not collected electronically prior to July 2006.