ICR Documents

Supporting Statement A Document Date Uploaded 0- SSA National ALS Registry 2026.docx 05/07/2026 Supporting Statement B Document Date Uploaded 0- SSB National ALS Registry 2026.docx 05/07/2026 Supplementary Documents Title Document Document Type Date Uploaded ALS Registry Consent Form Appendix D - Consent Forms - Clean.docx Supplementary Document 08/02/2024 Incentives Pilot Proposal Appendix U - Incentives Pilot Proposal - New.docx Supplementary Document 08/02/2024 60-day FRN 0 - 60-day FRN Publication Request Form - Registry 2025.docx Supplementary Document 05/08/2026 APPENDIX D1 - Consent Forms APPENDIX_D1_-_Consent_Forms[1].docx Supplementary Document 05/08/2026 IRB 2026 Approval Memo 5768 Attach4 IRB 2026 Approval Memo 5768.pdf Supplementary Document 05/08/2026 Summary of Changes Attach3Summary of Changes.docx Supplementary Document 05/08/2026 Public Health Law 110-373 Attach1Public Health Law 110-373.docx Supplementary Document 05/08/2026 Prevalence Rate State 4yr avg Attach9 Prevalence Rate State 4yr avg.xlsx Supplementary Document 05/11/2026 Biorepository Pilot Summary Report Attach7 Biorepository Pilot Summary Report.pdf Supplementary Document 05/11/2026 Survey Burden Calculation Attach8 Survey Burden Calculation.docx Supplementary Document 05/11/2026 National Office Outreach Repo Attach6B National Office Outreach Repo.xlsx Supplementary Document 05/11/2026 Privacy Impact Assessment Attach5 Privacy Impact Assessment.pdf Supplementary Document 05/11/2026 Change Request Justification 0923-0041 Change Request Justification 05172024_V1.docx Justification for No Material/Nonsubstantive Change 08/02/2024 Public Comments Author Name Comment Document Author Affiliation Sponsoring Org. Type Category Date of Comment Date Comment Received Anonymous Attach2a Public Comments Received.docx Other -- Simple 05/08/2026 05/08/2026