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HHS/OS RIN: 0991-AB54 Publication ID: Fall 2010 
Title: Standards for Privacy of Individually Identifiable Health Information; Modifications to the HIPAA Privacy Rule Required by the Genetic Information Nondiscrimination Act of 2008 
Abstract: The Department of Health and Human Services Office for Civil Rights will issue final rules to implement the modifications to the HIPAA Privacy Rule required by section 105 of the Genetic Information Nondiscrimination Act of 2008. These rules will prohibit certain health plans from using or disclosing genetic information about an individual for underwriting purposes. 
Agency: Department of Health and Human Services(HHS)  Priority: Other Significant 
RIN Status: Previously published in the Unified Agenda Agenda Stage of Rulemaking: Final Rule Stage 
Major: No  Unfunded Mandates: No 
CFR Citation: 45 CFR 160    45 CFR 164   
Legal Authority: 42 USC 1320d-9   
Legal Deadline:
Action Source Description Date
Final  Statutory    05/21/2009 
Timetable:
Action Date FR Cite
NPRM  10/07/2009  74 FR 51698   
NPRM Comment Period End  12/07/2009    
Final Action  12/00/2010    
Regulatory Flexibility Analysis Required: No  Government Levels Affected: None 
Federalism: No 
Included in the Regulatory Plan: No 
RIN Data Printed in the FR: No 
Agency Contact:
Andra Wicks
Health Information Privacy Specialist
Department of Health and Human Services
Office for Civil Rights
200 Independence Avenue SW.,
Washington, DC 20201
Phone:202 205-2292
Fax:202 205-4786
Email: andra.wicks@hhs.gov