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HHS/OCR RIN: 0945-AA00 Publication ID: Spring 2023 
Title: HIPAA Privacy: Changes to Support, and Remove Barriers to, Coordinated Care and Individual Engagement 

This rule will address proposals to modify the HIPAA Privacy Rule to strengthen individuals’ rights to access their own protected health information, including electronic information; improve information sharing for care coordination and case management for individuals; facilitate greater family and caregiver involvement in the care of individuals experiencing emergencies or health crises; address disclosures in emergency or threatening circumstances; and reduce administrative burdens on HIPAA covered health care providers and health plans, while continuing to protect individuals’ health information privacy interests.

Agency: Department of Health and Human Services(HHS)  Priority: Economically Significant 
RIN Status: Previously published in the Unified Agenda Agenda Stage of Rulemaking: Long-Term Actions 
Major: Yes  Unfunded Mandates: Private Sector 
CFR Citation: 45 CFR 160    45 CFR 164   
Legal Authority: Health Insurance Portability and Accountability Act of 1996 (HIPAA), sec. 264 (42 U.S.C. 1320d-2 note)    Health Information Technology for Economic and Clinical Health (HITECH) Act, sec. 13405 (42 U.S.C. 201 note)   
Legal Deadline:  None
Action Date FR Cite
RFI  11/01/2018  83 FR 64302   
RFI Comment Period End  02/19/2019 
NPRM  01/21/2021  86 FR 6446   
NPRM Comment Period Extended  03/10/2021  86 FR 13683   
NPRM Comment Period End  03/22/2021 
NPRM Comment Period Extended End  05/06/2021 
Final Action  12/00/2024 
Regulatory Flexibility Analysis Required: No  Government Levels Affected: Federal, Local, State, Tribal 
Small Entities Affected: No  Federalism: No 
Included in the Regulatory Plan: No 
RIN Information URL:  
RIN Data Printed in the FR: No 
Agency Contact:
Marissa Gordon-Nguyen
Senior Advisor for Health Information Privacy, Data, and Cybersecurity Policy
Department of Health and Human Services
Office for Civil Rights
200 Independence Avenue SW,
Washington, DC 20201
Phone:800 368-1019
TDD Phone:800 537-7697